‘Growing up with a chronically ill family member- the impact on and support needs of young adult carers: a scoping review’

Author(s): Van der Werf, Hinke M; Luttik, Marie Louise A ; de Boer, Alice; Roodbol, Petrie F; Paans, Wolter
Publisher: International Journal of Environmental Research and Public Health
Year Published: 2022
Resource type: Peer Reviewed Research Article


This article reviewed 12 studies from 2005-2020 to identify the impact of growing up with a chronically ill family member on young adults (18-25 years), and their specific needs. Of the 12 studies, eight explored the impact, consequences physically and mentally, personal development and future perspectives, and positive effects, and four explored the needs of young adult carers such as emotional needs, support needs related to autonomy, identity, and concerned professionals. The study suggests that these findings are not generalizable and called for more well-designed research that involves the ideas and active participation of young adult carers aged 18-25.

Citation: Van der Werf, H. M., Luttik, M. L. A., de Boer, A., Roodbol, P. F., & Paans, W. (2022). Growing up with a Chronically Ill Family Member-The Impact on and Support Needs of Young Adult Carers: a Scoping Review. International Journal of Environmental Research and Public Health, 19(2), 1-16. https://doi.org/10.3390/ijerph19020855

Keywords: Informal care; young adult carers; growing up with care; impact; needs; support; scoping review

Where the data was collected: N/A